Mesothelioma Diagnosis Support

MesoCareResources

A mesothelioma diagnosis, as with other cancers, has a devastating effect on both the patient and his or her loved ones. Those of you who are already diagnosed, or are caring for someone who has been, no doubt know this all too well. It is essential for most patients and their families to obtain as much support as possible to cope with the disease.

The despair of those caring for someone with mesothelioma is heightened by feelings of helplessness, in the knowledge that a kiss will not make it better, ignoring it will not make it go away, and that no amount of money could make the slightest difference to the outcome. They try to remain strong for their loved one, but at the same time need – more than ever – the strength they have always found in their loved one’s embrace.

In the hopes that we might ease your difficult journey, we will discuss:

Coping with Your Feelings

Spiritual & Psychological Support

Financial
Support

Links to Other Resources

Coping with your Feelings

Many people, when told they have mesothelioma, feel helpless. But there are many things you and your family can do.

Understanding Your Illness Treatment

  • Talk to someone who really knows about mesothelioma. Doctors, nurses and social workers at the major mesothelioma centers have extensive knowledge about mesothelioma.
  • Call us at 1-800-780-2686 or email us for a list of mesothelioma doctors, mesothelioma clinical trials, and mesothelioma hospitals.
  • Write a list of questions to ask your doctor.
  • Ask about sources of information and support when you go to the hospital. You may not be told what is available unless you ask.

These things will enable you and your family to know what to expect and to take actions which can help your treatment.

Practical and Positive Tasks

When you are being treated, or are recovering from treatments, you may not be able to do many of the things you used to do. But as you begin to feel better, have a go at simple tasks and gradually try to do a little more. Success will give you confidence, but remember to be patient and take one step at a time.

Only do these things if you want to, and only if they make you feel better. Well-meaning friends or relatives may make all sorts of recommendations about what you should do or be doing. You don’t, however, have to make any sudden or drastic changes to your lifestyle. If you have been recently diagnosed or treated, you may feel you have had enough change for a while.

MesoCareMesothelioma Diagnosis Support

All people want to improve the way they feel.

  • Following a healthy, well-balanced diet
  • Learning relaxation techniques
  • Exercising regularly

Many patients say that exercise helps them:

  • Not dwell on their condition
  • Make the most of what they have
  • Do the things they’ve often put off before
  • Feel a heightened sense of well being

If you decide to exercise:

  • Build up slowly
  • Set realistic targets
  • Base the type of exercise, how strenuous it is, and how often you do it, on what you are used to and how well you feel
  • Many people strongly recommend joining a support group. While there may not be a support group specifically for mesothelioma patients in your area, joining a support group for cancer patients is helpful as well.
  • If you are at home more than you were, you might want to get a dog. You’ll get daily exercise and meet a lot of people while walking your dog.

Mesothelioma Spiritual & Psychological Support

In these difficult times, many people come closer to God. Most mesothelioma cancer hospitals have a resident spiritual advisor available. Feel free to contact the chaplain or other spiritual advisor to seek divine strength in these difficult times. We found the following verses quite moving and hope it gives you strength:

What Mesothelioma Cannot Do

  • It cannot cripple love.
  • It cannot shatter hope.
  • It cannot corrode faith.
  • It cannot destroy peace.
  • It cannot kill friendship.
  • It cannot suppress memories.
  • It cannot silence courage.
  • It cannot invade the soul.
  • It cannot steal eternal life.
  • It cannot conquer the spirit.

A Prayer to Keep Going

God, I need you.
Carry me when I’m weak.
Hold me when I’m tired.
Love me when I cannot care anymore.
And when I huddle lonely and afraid,
cover me with your strong protective hands.
Guard my sleep, and wake me in the morning.
Rested and strong,
and ready to try again.

Psychological Assistance for Mesothelioma Patients

Many people diagnosed with mesothelioma are reluctant to seek help from psychologists or psychiatrists because they perceive this as a sign of weakness, or because they are not aware of the benefits of such counseling. Psychological assistance, however, has proven to be an invaluable tool in helping people cope with mesothelioma. Therefore, at the very least, mesothelioma patients and their families should explore available counseling and support networks.

Mesothelioma Financial Support

The inability to work compounded by the cost of treatment and support, can be very taxing on families of mesothelioma patients, on top of the stress and pain of the illness itself.

Some important topics that you should address include:

  • The need for family openness in discussing and finding solutions to financial matters.
  • The importance of practicing basic financial planning, which includes making a budget that takes into account new expenses and loss of income and monitoring cash flow.
  • The need for all adults to have a will and other essential paperwork in place.

Mesothelioma victims may need assistance from the following:

  • Licensed Certified Financial Planners – can help with managing and structuring your money
  • Hospital Billing Representatives – can help with insurance questions and issues
  • Insurance Agents/Specialists – can provide assistance on insurance coverage issues
  • Bankers and Bank Trust/Loan Officers – may be able to lend money
  • Social Security/Medicare/Medicaid Representatives – may assist in providing additional sources of income and covering certain hospital payments or prescription costs
  • U.S. Department of Veterans Affairs (VA) – can provide compensation if you are a veteran who was exposed to mesothelioma during your military service
  • Attorneys – can often recover significant compensation due to asbestos involvement, help draft a will, and prepare healthcare power of attorney and other important documents

Call us at 1-800-877-6000, email us, or fill out a form with a specific request.

Links to Other Resources

Below, a list of links to other sites that may be helpful to you:

*Federal Financial Assistance

FOR VA/SOCIAL SECURITY/MEDICARE/MEDICAID CLAIMS – WE HAVE TRAINED ADVOCATES AS WELL AS OTHER MESOTHELIOMA PATIENTS WHO HAVE ALREADY COMPLETED THEIR PAPERWORK WHO CAN ASSIST YOU EXPEDITE YOUR CLAIMS.


Transportation Assistance

Housing Assistance

Prescription/Medication Assistance

Cancer Resources and Health Links:

Military and Veterans Links:

Hospice and Care Services Links:

Retirement and Resources Links:

Miscellaneous Links:

If you or a loved one have been diagnosed with mesothelioma, let our patient advocates help you get the best care available. If you need free assistance with finding doctors, the best treatment centers, financial assistance, or more detailed mesothelioma information, contact us today. We are here to help.